The Patient Engagement Studio Patient Panels review projects and can act as co-investigators in projects. The panels consist of a Main Studio as well as Condition- and Population-Specific Patient Panels. The Main Studio is led by the director and initially reviews all projects prior to the creation of a condition and population studio. Condition and Population Specific Patient Panels are only created once funding is obtained. These panels are facilitated by a scientific lead and include compensated Patient Experts, clinicians and relevant community and health system stakeholders.
This diverse group of eight to 20 patients ranges from high school students to retirees. They represent a variety of health conditions, demographics and identities. They have vast life experiences and all have been trained to provide substantial and significant feedback to research teams and innovators.
Current Condition and Population Specific Patient Panels include: Rheumatoid arthritis, diabetes, breast cancer and Virtual Patient Experts. This last panel has patient experts from South Carolina, North Carolina and Georgia and was created to recruit and train patients who are underrepresented in patient engagement work and in research.