- The Growth of the Patient Expert As Told Via Photovoice
Investigators: Gartner, T.*, Parris, K., Walker, E.*, Kennedy, AB., Mitcham, A.*, Natafgi, N.
Conference: Academy Health Annual Research Meeting (ARM)
Location: Batlimore, Maryland
Date: July 1, 2024 - Breaking Boundaries: Empowering Patient Voices through Nationwide Virtual Engagement
Studios
Investigators: Natafgi, N., Baxter, K.**, Katzman, E.**, Parris, K., Nourse, A.*, Mitcham, A.*, Kennedy, AB.
Conference: Academy Health Annual Research Meeting (ARM)
Location: Batlimore, Maryland
Date: July 1, 2024 - Better Internet, Better Health: A Statewide Assessment of Broadband Access in Underserved
Communities in South Carolina
Investigators: Natafgi, N., Osterman, J., Kennedy, AB., DiStefano, C., Albertson, F.*, Moreland, J., Stritzinger, J.
Conference: Academy Health Annual Research Meeting (ARM)
Location: Batlimore, Maryland
Date: July 1, 2024
- From Hope to Action: The Evolution of the Patient Expert
Investigators: Gartner, T.*, Parris, K., Walker, E.*, Mitcham, A.*, Natafgi, N., Kennedy, AB.
Conference: Prisma Health Research Showcase
Location: Columbia, SC
Date: October 1, 2023 - Innovative Methodology to Engage Patients in Setting Research Priorities for Post-Acute
Sequelae Sars-Cov-2 Infection
Investigators: Conor O'Boyle, Ariana Mitcham, Katie Parris, Jeanette Coffin, Evan Katzman, Amy Broomer, Nabil Natafgi, Ann Blair Kennedy
Conference: Academy Health Annual Research Meeting (ARM)
Location: Seattle, Washington
Date: June 26, 2023 - In for the Long-Haul: Meaningful Engagement of Long-Haul COVID-19 Patients in Healthcare
Research
Investigators: Mitcham, A.,* Parris, K., Kennedy, AB., Natafgi, N.
Conference: Discover USC
Location: Columbia, SC
Date: April 15th, 2023 - Engagement Through a Patient, Caregiver and Provider Lens: The Portrait of the Patient
Expert
Investigators: Erin Walker, Malorie Webb, Nabil Natafgi, Ann Blair Kennedy
Conference: The Beryl Institute
Location: Dallas, Texas
Date: March 18th, 2023 - You want to Use. My Data?!?”: How the Patient Engagement Studio Can Collaborate with
Big Data Researchers
Investigators: Mitcham, A.,* O’Boyle, C.,* Cartee, G.,** Parris, K, Kennedy, AB, Natafgi, N.
Conference: 4th Annual Big Data Health Science Conference
Location: Columbia, SC
Date: February 18, 2023
- Expert Patient Perspectives on Screening and Addressing the Social Determinants of
Health at Prisma Health
Investigators: Jeanty, M.*, Kao, E.*, Elder, T, Kennedy, AB, Macauda, M., Rudisill, C., Eicken, M.
Conference: Prisma Health Annual Research Showcase
Location: Greenville, SC
Date: October 10, 2022
- Preferences of Patients with Rheumatoid Arthritis are Diverse and Changeable
Investigators: Cozad, M., Tabassum, M.**, Nourse, A., Merchant, G., Lindley, LC., Horner, R.
Conference: ISPOR
Location: Virtual Conference
Date: September 1, 2021 - Controlling What We Can: Identifying Barriers to Diabetes Care in a Low SES Diabetic
Patient Population
Investigators: Rader, S.**, Fleming, P.**, Scarborough, L.**, Nourse, A., Jindal, M., Cozad, M.
Conference: 2021 Annual SC Upstate Research Symposium
Location: Greenville, SC
Date: April 23, 2021 - Controlling What We Can: Identifying Barriers to Diabetes Care in a Low SES Diabetic
Patient Population
Investigators: Rader, S.**, Fleming, P.**, Scarborough, L.**, Nourse, A., Jindal, M., Cozad, M.
Conference: 2021 University of South Carolina Discover USC
Location: Columbia, SC
Date: April 9, 2021 - Virtual Patient (VIP) Engagement Studio: Using Technology to Engage Hard-to-Reach
Patients
Investigators:
Conference: Academy Health Annual Research Meeting : ARM
Location: Virtual Conference
Date: June 1, 2021
- RunRA-How Patients Use a Mobile Application for the Precision Management of Rheumatoid
Arthtitis
Investigators: Cozad, M., Merchant, G., Oostdyk, A.**, Tyson, N., Nourse, A., Horner, R.
Conference: Prisma Upstate Research Showcase
Location: Greenville, SC
Date: April 8, 2020 - RunRA-mHealth Technology in the Precision Management of Rheumatoid Arthritis
Investigators: Cozad, M., Merchant, G., Oostdyk, A.**, Tyson, N., Nourse, A., Horner, R.
Conference: 7th Annual Care Coordination Institute Symposium- Powerful Partnerships Reimagining Health Care Beyond Our Walls
Location: Greenville, SC
Date: April 1, 2020 - Building Collaborative Partnerships to Develop a Shared Decision Making Tool to Encourage
Informed Colorectal Cancer Screening
Investigators: Oostdyk-Clark, A.**, Craddock, C., Evans, P.*, McCarthy, M.*, Jindal, M., Hudson, M., Cozad, M.
Conference: 9th International Conference on Patient-and Family-Centered Care: Partnerships for Quality, Safety, and Equity
Location: Virtual Conference
Date: August/September 2020 - Medical Shame: Implications For Patient-centered Care and Research
Investigators: Wagner, P., Kennedy, AB., Robb, S., Sutherland, M., Brown, C.*, Fivecoat, J.*, Frederick, D.*, Jones, M.*, Payne, J.*, Sterling, J.*
Conference: 9th International Conference on Patient-and Family-Centered Care: Partnerships for Quality, Safety, and Equity
Location: Virtual Conference
Date: August/September 2020 - Turning Patient Questions into Research Projects: Creating Evidence that Patters to
Patients
Investigators: Wagner, P., Kennedy, AB., Robb, S., Sutherland, M., Frederick, D.*, Jones, M.*, Payne, J.*, Watkins, E.*
Conference: 9th International Conference on Patient-and Family-Centered Care: Partnerships for Quality, Safety, and Equity
Location: Virtual Conference
Date: August/September 2020 - Mindset Matters: Patient Experts' tips and tools for scientists to enhance meaningful
engagment of patients as co-investigators
Investigators: Kennedy, AB., Fivecoat, J.*, Cozad, M., Evans, P.*, Crosby, K.**, McCarthy, M.*, Wagner, P., Brown, C.*
Conference: 9th International Conference on Patient-and Family-Centered Care: Partnerships for Quality, Safety, and Equity
Location: Virtual Conference
Date: August/September 2020 - Coping with Covid-19: Ways patients with rheumatoid arthritis alter their behavior
to reduce their risk of exposure
Investigators: Cozad, M., Whitt, O., Fasana, C., Hurst, M., Nourse, A., Epright, M., Merchant, G., Kennedy, AB.
Conference: Nvivo Virtual Conference 2020, Qualitative Research in a Changing World
Location: Virtual Conference
Date: September 23, 2020
- Include Everyone - Partnering with Patients and the Public to Improve Research and
Evaluation
Investigators:
Conference: American Evaluation Association, Evaluation 2019: Paths to the Future of Evaluation
Location: Minneaplis, MN
Date: November 14, 2019
- Integrating Patient Voices into Research
Investigators: Kennedy, AB., McCarthy, M.*, Fivecoat, J.*, Wagner, P.
Conference: American Evaluation Association, Evaluation 2018: Speaking Truth to Power
Location: Cleveland, OH
Date: October 31, 2018 - Practicing Effective Communication and Building Trust Among Patients and Researchers
Investigators: Kennedy, AB., Wagner, P., Brown, C.*, Evans, P.*, Payne, J.*, Sterling, J.*
Conference: Institute for Patient-and Family-Centered Care
Location: Baltimore, MD
Date: June 1, 2018 - Patients as Research Partners in the Development of a Tool to Enhance Shared Decision
Making for Rheumatoid Arthritis
Investigators: Cozad, M., Evans, P.*, Crosby, K.**
Conference: Institute for Patient-and Family-Centered Care
Location: Baltimore, MD
Date: June 1, 2018
Patient Experts*
Students**