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Patient Engagement Studio

  • Close up of young people greeting each other at the work table.

Partnering with Patient Engagement Studio

The Patient Engagement Studio is a consultative session for researchers interested in getting input on their work from patients, caregivers, health care providers, community members and other non-researcher stakeholders.

A panel of stakeholders, whose characteristics are defined by the researcher, will be assembled to provide feedback to enhance the planning, design, implementation, translation or dissemination of your research.


  • Add patient and community stakeholder perspective to meaningful research.
  • Strengthen the quality and relevance of our research to improve the quality of life in communities.
  • Include patients as patient “scientists”.

Research Benefits

  • Establishing credibility.
  • Anticipating controversy.
  • Ensuring transparency and accountability.
  • Improving relevance.
  • Enhancing quality.
  • Increasing dissemination and uptake of findings.

Expectations for Researchers

Using the provided template, researchers must submit a short PowerPoint presentation to the PES coordinator two weeks prior to scheduled presentation. The following will be considered as PES staff reviews the presentation:

  • Using language that patients can understand.
  • Including three to four specific questions for patient experts on the second-to-last slide.
  • Including all researchers involved with the study, their degrees, their institutions and their departments on the last slide. 
  • Attendance at scheduled session presenting no more than 30 minutes — most of the session involves patient feedback and discussion.
  • Willingness to receive feedback and suggestions from the patient experts, but not all suggestions need to be incorporated into projects.
  • Inclusion of PES funding in preparation of external grants that will continue use of patient studios.
  • Consideration of ongoing studio use throughout your project and in disseminating results.

Researcher Expectations from the Studio

  • Feedback on initial PowerPoint prior to presentation.
  • Limited interruptions during studio presentations except for clarification questions.
  • Expression of honest and transparent patient and other PES member opinions about the study at hand.
  • Receipt of written report, based off the PCORI rubric, within three weeks of the presentation or session notes.

Challenge the conventional. Create the exceptional. No Limits.