Purpose

• Add patient and community stakeholder perspective to meaningful research.
• Strengthen the quality and relevance of our research to improve the quality of life in communities.
• Include patients as patient “scientists”.

Research Benefits

• Establishing credibility.
• Anticipating controversy.
• Ensuring transparency and accountability.
• Improving relevance.
• Enhancing quality.
• Increasing dissemination and uptake of findings.

Expectations for Researchers

Using the provided template, researchers must submit a short PowerPoint presentation to the PES coordinator two weeks prior to scheduled presentation. The following will be considered as PES staff reviews the presentation:

• Using language that patients can understand.
• Including three to four specific questions for patient experts on the second-to-last slide.
• Including all researchers involved with the study, their degrees, their institutions and their departments on the last slide. 
• Attendance at scheduled session presenting no more than 30 minutes — most of the session involves patient feedback and discussion.
• Willingness to receive feedback and suggestions from the patient experts, but not all suggestions need to be incorporated into projects.
• Inclusion of PES funding in preparation of external grants that will continue use of patient studios.
• Consideration of ongoing studio use throughout your project and in disseminating results.

Researcher Expectations from the Studio

• Feedback on initial PowerPoint prior to presentation.
• Limited interruptions during studio presentations except for clarification questions.
• Expression of honest and transparent patient and other PES member opinions about the study at hand.
• Receipt of written report, based off the PCORI rubric, within three weeks of the presentation or session notes.