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  CDC:Surveillance and Research of Muscular Dystrophies and Neuromuscular Disorders RFA-DD14-001

This funding opportunity announcement (FOA) will support: 1.Conducting population-based surveillance, longitudinal follow-up, and public health research for muscular dystrophies and neuromuscular disorder(s) using methods based on those from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): 1) to develop estimates for prevalence, survival, healthcare service use and costs, disparities in access to care (by proximity to source of care, race/ethnicity, and socioeconomic status (SES)), and 2) to determine associations between specific clinical treatments and specific outcomes for specific types of muscular dystrophy (MD) and neuromuscular disorders, and 3) to support public health and clinical practice for prevention of morbidities and their progression among persons with muscular dystrophy and neuromuscular disorders 2.Expanding the number of surveillance site(s) to increase the demographic, racial, and ethnic diversity of the MD surveillance system 3.Sharing data with stakeholders seeking to improve health and access to care of people living with these conditions 4.Evaluating, modifying, and documenting the methodology and infrastructure of the surveillance system 5.Conducting pilot studies that investigate specific MD knowledge gaps and sharing results with participants and stakeholders

USC may only submit one application in response to this program announcement. Your application submission MUST be coordinated with the Office of the Vice President for Research. Please send a two page abstract via email to Richard White ( by January 20, 2010. In addition to the 2-page abstract, you should also submit a biosketch for the PI.

CDC indicates that a letter of intent is due on February 7, 2014 and a full proposal is due by March 7, 2014 . For more information:
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